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The One in a Million Baby

Our lives are full of odds. We buy lottery tickets when the chances of winning are as small as one in 40 million. But when the circumstances are a little different and the odds mean something rare and unusual, like a chromosomal abnormality or a medical condition in our children, we dismiss the much higher odds which can be as high one in 800 because we assume it won’t be us who make up that one. The One in a Million Baby tells the stories of the children and their parents who find themselves as that one in a thousand, or one in ten thousand, or even one in a million position and how they come to cope.
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Now displaying: January, 2017
Jan 29, 2017

When Ellie and Mike found out their daughter, Ellie, had a rare form of leukodystrophy called leukoencephalopathy with brainstem and spinal cord involvement and lactate elevation, or LBSL for short, they were devastated.This episode tells the story of the discovery of this diagnosis and what they have done since then to fund research for a cure. 

Jan 12, 2017

Artist, writer and art teacher, David Borden lost his daughter to complications of cerebral palsy in 2015, just shy of her 16th birthday. Since then he has been working on a graphic novel, And So We Rise, which chronicles her life and shares her story. 

Jan 1, 2017

After two miscarriages LaTanya and her husband Greg had their son, Tre. After Tre's birth he was diagnosed with arthrogryposis, a condition which causes multiple joint contractures throughout the body. At age seven, Tre was also diagnosed with autism. Through her journey with Tre, LaTanya tells us about how she become her son's advocate and learned to maximise life and experiences for Tre. 

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