When Ellie and Mike found out their daughter, Ellie, had a rare form of leukodystrophy called leukoencephalopathy with brainstem and spinal cord involvement and lactate elevation, or LBSL for short, they were devastated.This episode tells the story of the discovery of this diagnosis and what they have done since then to fund research for a cure.
Artist, writer and art teacher, David Borden lost his daughter to complications of cerebral palsy in 2015, just shy of her 16th birthday. Since then he has been working on a graphic novel, And So We Rise, which chronicles her life and shares her story.
After two miscarriages LaTanya and her husband Greg had their son, Tre. After Tre's birth he was diagnosed with arthrogryposis, a condition which causes multiple joint contractures throughout the body. At age seven, Tre was also diagnosed with autism. Through her journey with Tre, LaTanya tells us about how she become her son's advocate and learned to maximise life and experiences for Tre.